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Commentary

Congenital Heart Disease in Canada: The Need for Comprehensive and Accessible Care

Fregonas A (HBSc)

University Of Ottawa Faculty Of Medicine, MD 2025 Candidate, Secretary And Board Member, Canadian Congenital Heart Alliance, Canada.


Kugamoorthy P (MD)

Vice-President Canadian Congenital Heart Alliance, Department Of Cardiology And Translational Research, University Health Network, Canada.


Recieved on: 2023-11-17, Accepted on: 2024-10-29, Published on: 2024-11-05

Abstract

Advancements in the medical management of congenital heart disease (CHD) have considerably improved prognosis and outcomes for affected individuals. However, significant gaps remain in ensuring lifelong, multidisciplinary care for the CHD community. Approximately 1 in 100 newborns will be diagnosed with CHD in Canada. CHD is a chronic condition that requires continuous follow-up with trained providers. Yet, access to comprehensive care remains limited across the country. This commentary addresses the disparities that exist within the field of CHD, highlighting the lack of available providers, the need for more accessible ACHD centers, the vulnerable populations in Canada, as well as the gaps that exist within CHD research. The authors urge the medical community to prioritize the expansion of accessible care, consider social determinants of health in the context of CHD, and employ strategies to meet the needs of Canadians living with CHD, advocating for a national approach to bridge these critical gaps.

Keywords

Congenital Heart Disease (CHD); Adult Congenital Heart Disease (ACHD); Health Disparities in Canada; Social Determinants of Health